Craniomandibular osteopathy CMO

My 5 month old lab puppy was just given a suspected diagnosis of CMO earlier this week. I rushed him to the emergency vet on Sunday for sudden lethargy/bony lump under his chin. He spent 2 nights in the icu. He presented with a high fever and high white blood count at the vet. His fever came down by Sunday evening with antibiotics and iv fluids. On Monday they xrayed his skull and the radiologist suspects CMO but the results are not “classic” because it’s not presenting bilaterally. Monday evening they did a chest X-ray and found he has pneumonia. They sent out his bloodwork to a specialist and found no overt signs of cancer. I brought my puppy home on Tuesday. He is on medications for the pneumonia and is doing well with recovery. He will have another chest X-ray next Friday to check his progress.
My bigger issue is the CMO. My puppy can’t undergo further testing (CT scan/biopsy) at this point due to the pneumonia. He can’t be sedated for the tests until his lungs are clear.

My regular vet has not heard of CMO but he has been researching as have I. (The emergency vet has seen very very few cases and they were very doom and gloom.) We’ve both read the bony growth can continue to grow until the puppy stops growing but then there can be regression. I found an old post on a retriever forum from 2008 where the dog had a good outcome with CMO. This is such a rare disease that I can’t find much information on it.

Has anyone had this diagnosis? How did you manage it? I need hope!